Sunday, April 24, 2011

Free Help for Wandering

Half of All Children With Autism Wander and Bolt from Safe Places, Study Shows
ScienceDaily — The Interactive Autism Network (IAN) reveals the preliminary results of the first major survey on wandering and elopement among individuals with autism spectrum disorders (ASD), and announces the launch of a new research survey on the association between pregnancy factors and ASD. The wandering and elopement survey found that approximately half of parents of children with autism report that their child elopes, with the behavior peaking at age four. Among these families, nearly 50% say that their child went missing long enough to cause significant concern about safety.
The wandering and elopement survey found that approximately half of parents of children with autism report that their child elopes, with the behavior peaking at age four. Among these families, nearly 50% say that their child went missing long enough to cause significant concern about safety.
 T
he National Autism Association, through a generous grant from the American Legion Child Welfare Foundation, is pleased to provide the Big Red Safety Box for caregivers as a means to educate, raise awareness and share simple tools that may assist in preventing, and responding to, wandering-related incidents in the ASD community. 
Click on the link below to sign up for your free Big Red Safety Box:
http://nationalautismassociation.org/bigredsafetybox.htm

Saturday, April 23, 2011

Develpomental Disabilities Awareness Day

On May 26, 2011 the 23rd Annual DDDay will be held at the Buffalo Niagara Convention Center. All of the info. is listed below. You have until May 2nd to reserve your spot.
 
April 1, 2011
For Immediate Release
Contact: Kim Palermo, DDDay Chairperson: (716) 896-2180, ext. 143
DEVELOPMENTAL DISABILITIES AWARENESS DAY
THE LARGEST CONFERENCE OF ITS TYPE IN THE USA!
THURSDAY, MAY 26, 2011 – BUFFALO, NEW YORK
The
held on
Center.
This event,
individuals with developmental disabilities and their families, human service agency
representatives, and local officials to explore current issues in the field. The day will include
speakers, workshops, vendor exhibits, and provide information on the many services available to
people with developmental disabilities living in the Western New York community.
This year’s
human services and community issues, is the author of six books that have won praises and
awards for their thoughtful approach to culture and community.
The conference will
participation, contribution and involvement of developmentally disabled people in the Western
New York community and society overall.
Additionally, there will be a Parents Area where parents can talk to experts from local agencies
and have their questions answered. Other special events include an Art Gallery featuring local
artists, an Internet Café and various performers throughout the day.
Registration for the conference is open to all and pricing and further information is available by
visiting

I'd also like to wish everyone a Happy Easter! If you don't celebrate Easter then Happy Sunday!
23rd Annual Developmental Disabilities Awareness Day, or DDDay! conference will beThursday, May 26, 2011, from 8:00 am - 4:00 pm at the Buffalo Niagara Conventionwhich is open to the public, will bring together approximately 2,000 people includingkeynote speaker is Dr. Al Condeluci, PhD. a national leader and consultant onfeature 29 workshops and seminars on various topics concerning the validhttp://wwwddawny.eventbrite.com or calling (716) 896-2180 Ext. 139 .

PRESS RELEASE

Wednesday, April 20, 2011

Temple Grandin @ Canisius College TONIGHT

Temple Grandin 
"Animal Behavior, Autism and Sensory Based Thinking" 
Canisius College
Wednesday April 20, 2011 @ 8 pm   Doors Open at 7 pm 
Free and open to the public but seating is limited to first come first served
Location: Montante Cultural Center
2001 Main Street, Buffalo, NY 14208
Parking in Lyons Hall Lot and Science Hall Parking Ramp. 
You do not need to register. Come early as it is first come first served seating.
More info: www.canisius.edu 
or call 888-8206 

Six Part Series on "Autism Today" 
PBS Newshour
Starts Monday April 18, 19, 20,21, 25  
Ends Tuesday April 26 
6:30 pm  
Robert MacNeil, grandfather to 6 year old Nick with autism hosts this six part series.  Includes:  Intro/Autism Prevalence/Autism Causes/Autism Treatment/Adults with Autism/Autism Policy.

Free Communication Workshop
Autistic Services Inc.  
Wednesday April 27, 2011 
5 pm - 7 pm 
To learn more about various methods of communication and how to maximize communication opportunities in the home.  Learn more about the communication methods your child uses at school.  
Location: Autistic Service 
4444 Bryant Stratton Way 
Williamsville, NY 14221 
Register by Thursday April 21st  call Tracy Panzarella 631-5777 ext 328 

Sensory Friendly Film  "Rio"  
AMF Maple Ridge Theatre - Suite C 
4276 Maple Road, Amherst NY 
Cost: $4.50 
Purchase tickets at the box office day of event.   Enjoy your favorite film is a safe and accepting environment on a monthly basis.   Lights brought up and sound turned down.  Bring your own GF CF snacks .  No advertisements or previews shown.  Audience members are welcome to shout, sing or dance.  Silence is golden policy is NOT enforced.  Obviously, policies enforced when safety of the audience is questioned.   

Autism Awareness Walk 
to benefit Summit Educational Resources
Saturday April 30, 2011 
Location: 150 Stahl Road, Getzville NY 
Registration: 9:00 a.m. 
Walk Begins: 10:00 a.m. 
Picnic with food, beverages, bounce houses, and children's activities immediately following the Walk

2011 Walk Now for Autism Speaks
I have started a team (Buffalo Herd) for the 2011 Walk Now for Autism Speaks in Rochester.
I am recruiting members to walk & raise money.
The walk is on Sept. 24, 2011, 12:30 p.m. registration, 1.5 mile walk starts at 2:00 p.m.
This is a family fun event to raise money for research.
Please join my team for this year and hopefully we can start a run in Buffalo in the next year or two. Follow the link below to get to the team page to join:

Friday, April 8, 2011

Autism Insurance Reform Bill in NY to be voted on Monday April 11, 2011

Below is an e-mail I recieved from "Autism Speaks"
The Autism Health Insurance refom bill for NY State will be voted upon on Monday, April 11. We need your help!!!!

And we're off!  We just found out that Senate Bill 4005, the autism insurance reform bill sponsored by Senator Charles Fuschillo, Jr., will be voted upon in the Senate Insurance Committee on Monday, April 11, 2011.  
We need your help today and over the weekend to contact all of the members of the Senate Insurance Committee below and leave a brief message that you would like them to vote in favor of the bill. 
 
Here is How YOU Can Help:


1) CALL THE SENATE INSURANCE COMMITTEE.  Each call should only take you one minute.    
Senator James L Seward                 518-455-3131                    
Senator Ruben Diaz                         518-455-2511
Senator Timothy M. Kennedy           518-455-2426
Senator Jose’ Peralta                       518-455-2529
Senator Stephan M. Saland             518-455-2411
Senator Malcolm A. Smith               518-455-2701
Senator Catharine Young                 518-455-3563
If you aren't sure of what to say, this will help get you started:
"Hi! My name is (NAME) and I am calling today to ask you to vote in favor of S. 4005, the autism insurance reform bill, when it comes up for a vote at the Insurance Committee meeting on Monday. It would mean a great deal to me and to my whole family (state one/two brief sentences as to why it is important.) Thank you so much!" 
Be polite and patient in getting your message across. 
2) SPREAD THE WORD! Magnify your voice today, this weekend and Monday morning by asking your friends, family, neighbors and coworkers to help you make these phone calls.  The more they hear from constituents like you, the more likely they are to vote in favor of the bill.

Working together we can, and will, obtain autism insurance reform for the state of New York.   
For more information on the legislation in New York, visit www.autismvotes.org/NewYork. 
Happy dialing!

Shelley Hendrix
Director, State Based Advocacy
Autism Speaks

Apologies

So sorry that I wasn't able to post the instructions for the body sack last weekend. Those of you taking care of an autistic child understand!! Anyway, a trip to visit my mom this morning & then back home to work on the sack. I will post it sometime this weekend, hopefully!