The program, which is a part of TDF’s Accessibility Programs (TAP), will present the first autism-friendly performance of a Broadway show at Disney’s landmark musical THE LION KING at the Minskoff Theatre (200 West 45th Street, NYC) on Sunday, October 2 at 1pm.
In order to be autism-friendly, the show is being performed in a friendly, supportive environment for an audience of families and friends with children or adults who are diagnosed with an autism spectrum disorder or other sensitivity issues. Slight adjustments to the production will include reduction of any jarring sounds or strobe lights focused into the audience. In the theatre lobby there will be staffed quiet areas, if anyone needs to leave their seats during the performance.
A downloadable social story (in Word format) with pictures of the theatre and production will soon be available on this page, designed to personalize the experience for each attendee with ASD.
Tickets are being offered through TDF at affordable prices:
Orchestra (all seats) — $79
Front Mezzanine (Rows A-G) & Box Seats — $67.50
Mid-Mezzanine (Rows H-J) — $57.50
Rear Mezzanine (Rows K-L) — $38.00
Limit 6 tickets per order. For larger groups and further information contact Deborah Stein, Coordinator of Autism Theatre Initiative: autism@tdf.org or call (212) 912-9770 x383 – Monday – Friday 11am to 3pm.
Running time: Two hours and thirty minutes, including one intermission.
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Now in its 14th year, over 55 million people worldwide have come to discover the wonder, the majesty, and the truly one-of-a-kind experience that is THE LION KING. Hailed by Newsweek as “a landmark event in entertainment,” THE LION KING is a breathtaking musical adventure that stretches the boundaries of Broadway, from the heart of Africa to the plains of your imagination. THE LION KING won six 1998 Tony® Awards: Best Musical, Best Scenic Design (Richard Hudson), Best Costume Design (Julie Taymor), Best Lighting Design (Donald Holder), Best Choreography (Garth Fagan) and Best Direction of a Musical, making Taymor the first woman in theatrical history bestowed with the honor.
TDF wishes to acknowledge the following donors for their generous support of the Autism Theatre Initiative:
The Joseph LeRoy and Ann C. Warner Fund, Inc.
Build-A-Bear Workshop Foundation
Lose The Training Wheels
Wednesday, June 15, 2011
PARENTS - Send Your Child to Cradle Beach Camp!!!
Cradle Beach still has openings in all five of its residential summer sessions for children between the ages of 8-16. Located just 30 minutes south of Buffalo on the shores of Lake Erie, Cradle Beach offers over 66 acres of woods and activity space to make your child’s summer camp experience a life changing event!
Cost for attending camp is based upon family income with many families paying less than $90 for a 10-residential camping program for their child. Limited scholarships are available to reduce the cost to just $40!! Transportation is provided. Call our Admissions office today at 549-6307x205 to receive an application and begin the process of having your child attend camp this summer. Additional information can be found at www.cradlebeach.org.
Wednesday, May 18, 2011
Awesome Website- Autismhangout.com
Good Morning! In my usual scouring the web for information & ideas about autism I luckily stumbled upon Autismhangout.com. This site has so much information, help, ideas, sharing, and much more. Instead of telling you about it I took the information about the site right from their "About Us" section. After reading about the site below, be sure to check it out. There is something for everyone on the spectrum!
From Autismhangout.com:
Today, autism associations (and their web sites) primarily focus efforts on finding CAUSES and CURES for autism. That’s great! But there are 12 to 17 million caregivers looking for daily insights on how to assist those living with autism. AUTISM HANGOUT provides the Autism Community with an online resource that compiles news, knowledge and personal experiences on how best to thrive with autism.
From Autismhangout.com:
Today, autism associations (and their web sites) primarily focus efforts on finding CAUSES and CURES for autism. That’s great! But there are 12 to 17 million caregivers looking for daily insights on how to assist those living with autism. AUTISM HANGOUT provides the Autism Community with an online resource that compiles news, knowledge and personal experiences on how best to thrive with autism.
What is Autism Hangout?
AUTISM HANGOUT is an online discussion forum that reports news, complies facts and community-submitted personal experiences and invites ongoing discussion to discover insights on how best to deal with the daily challenges of autism.
AUTISM HANGOUT is a dedicated resource serving the autism community, defined as:
a. Parents of children with autism
b. Children and adults with autism
c. Caregivers to the individual with autism such as siblings, grandparents, other relatives, teachers, classmates, doctors, clergy, care providers, community service professionals (i.e. policemen and firemen), neighbors and product and services providers wanting to service this community
d. The media at large
AUTISM HANGOUT is a compendium of community-reported reviews of products and services. Reviews serve as both recommendations and warnings. Product and service businesses are invited to join in discussions to learn how their offerings can best serve the autism community.
AUTISM HANGOUT is also a social networking opportunity – similar to myspace – that invites autism community members (i.e. caregivers as well as those with autism) to get to know and learn from each other. Groups of those sharing similar interests can also be formed.
AUTISM HANGOUT is an online discussion forum that reports news, complies facts and community-submitted personal experiences and invites ongoing discussion to discover insights on how best to deal with the daily challenges of autism.
AUTISM HANGOUT is a dedicated resource serving the autism community, defined as:
a. Parents of children with autism
b. Children and adults with autism
c. Caregivers to the individual with autism such as siblings, grandparents, other relatives, teachers, classmates, doctors, clergy, care providers, community service professionals (i.e. policemen and firemen), neighbors and product and services providers wanting to service this community
d. The media at large
AUTISM HANGOUT is a compendium of community-reported reviews of products and services. Reviews serve as both recommendations and warnings. Product and service businesses are invited to join in discussions to learn how their offerings can best serve the autism community.
AUTISM HANGOUT is also a social networking opportunity – similar to myspace – that invites autism community members (i.e. caregivers as well as those with autism) to get to know and learn from each other. Groups of those sharing similar interests can also be formed.
*The above information is from the website Autismhangout.com
Tuesday, May 17, 2011
Free Hands On Activities for Kids
Farmers' Market at the Williamsville Mill
Williamsville Farmers Market from 5/21-10/29 offers free hands on childrens activities every Saturday from 10 a.m. to 12 noon under the supervision of the following agencies:
5/21- Just For Kids
5/28- Ballet Arts
6/4- Open Door Nursery
6/11-Edukids
6/18- Childtime
6/25- Just For Kids
7/2-Just For Kids
7/9- Amherst Youth and Recreation
7/16- Childtime
7/23- Edukids
7/30-Audubon
8/6- Amherst Youth and Recreation
8/13- Edukids
8/20- Childtime
8/27- Just For Kids
9/3- Just For Kids
9/10- Open Door Nursery
9/17- Childtime
9/24- Karima Storyteller
10/1-Just for Kids
10/8- Special Activity with Karen
10/15- Childtime
10/22 and 10/29- Open
Sunday, May 15, 2011
Sensory Friendly Lion King in NYC
Sensory Friendly Showing of Lion King in New York
Theatre Development Fund (TDF) is piloting a new program, Autism Theatre Initiative, to make theatre accessible to children and adults on the autism spectrum, and their families.
June 27th to July 1st, 2011
East Aurora High School
East Aurora High School
DSPG is proud this year to partner with People, Inc. and Heritage Centers to bring the Lose The Training Wheels bicycle camp to Buffalo for a third Summer. This is a wonderful program for children 8 years and older with special needs to learn to ride a two wheeled bike in 5 days. The program has been such a success the past 2 years that this year's organizing committee has several parents on it whose children learned to ride and were so impressed that they wanted to help bring the program to Buffalo again so that other kids could take advantage of the opportunity.
For more information about the Buffalo camp, see the attached brochure, e-mail wnylearntoride@yahoo.com or call 817-7204. For more information about Lose The Training Wheels and to see videos of kids learning to ride, visit www.losethetrainingwheels.org.
For more information about the Buffalo camp, see the attached brochure, e-mail wnylearntoride@yahoo.com or call 817-7204. For more information about Lose The Training Wheels and to see videos of kids learning to ride, visit www.losethetrainingwheels.org.
PEOPLE FIRST WAIVER - PUBLIC FORUMS
The New York State Office for People With Developmental Disabilities (OPWDD) and the New York State Department of Health (DOH) will hold public forums to hear public comment on the development of the People First Waiver. Over the coming months, OPWDD and DOH will engage members of the public, key State agency leaders, experts in the fields of health care and long-term care, and representatives from nonprofit service providers in a collaborative process of developing the formal application to the federal government. The public forums are the first of many opportunities that will be provided for broad public participation in this process.
The forums are scheduled to occur in the following locations:
The New York State Office for People With Developmental Disabilities (OPWDD) and the New York State Department of Health (DOH) will hold public forums to hear public comment on the development of the People First Waiver. Over the coming months, OPWDD and DOH will engage members of the public, key State agency leaders, experts in the fields of health care and long-term care, and representatives from nonprofit service providers in a collaborative process of developing the formal application to the federal government. The public forums are the first of many opportunities that will be provided for broad public participation in this process.
The forums are scheduled to occur in the following locations:
New York City, May 25, 2011, at 75 Morton Street (three sessions, register for one)
10:00 a.m. – 12:00 p.m.
1:00 p.m. – 3:00 p.m.
4:00 p.m. – 6:00 p.m.
10:00 a.m. – 12:00 p.m.
1:00 p.m. – 3:00 p.m.
4:00 p.m. – 6:00 p.m.
Rochester, June 2, 2011, at the National Museum of Play, The Strong
1:00 p.m. – 4:00 p.m.
Schenectady, June 6, 2011, at 500 Balltown Road
1:00 p.m. – 4:00 p.m.
Video conference to multiple locations, May 31, 2011
1:00 p.m. – 4:00 p.m.
Sites established in Long Island DDSO, Broome DDSO, Sunmount DDSO, Taconic DDSO, Hudson Valley DDSO, and Western New York DDSO (Please see registration form for exact locations.)
The public is invited to submit recommendations during the forums that address the following questions:
How can we further break down barriers and support people to live truly integrated lives in the community?
What do families need to better support their loved ones at home?
What reform ideas do you have to help us operate more efficiently so that more funds can be directed to the services and supports people need to be healthy and engaged in meaningful work and activities?
What should we be measuring to tell us if we are doing a good job supporting people to have good health, positive relationships, live in homes of their choice, and enjoy meaningful activities and employment?
While the People First Waiver public forums are open to anyone, prior registration is required. To ensure all interested parties have the opportunity to present at these forums, recommendations should be limited to two minutes.
You may register by visiting the site below:
http://www.opwdd.ny.gov/2011_waiver/waiver_public_forums.jsp
1:00 p.m. – 4:00 p.m.
Schenectady, June 6, 2011, at 500 Balltown Road
1:00 p.m. – 4:00 p.m.
Video conference to multiple locations, May 31, 2011
1:00 p.m. – 4:00 p.m.
Sites established in Long Island DDSO, Broome DDSO, Sunmount DDSO, Taconic DDSO, Hudson Valley DDSO, and Western New York DDSO (Please see registration form for exact locations.)
The public is invited to submit recommendations during the forums that address the following questions:
How can we further break down barriers and support people to live truly integrated lives in the community?
What do families need to better support their loved ones at home?
What reform ideas do you have to help us operate more efficiently so that more funds can be directed to the services and supports people need to be healthy and engaged in meaningful work and activities?
What should we be measuring to tell us if we are doing a good job supporting people to have good health, positive relationships, live in homes of their choice, and enjoy meaningful activities and employment?
While the People First Waiver public forums are open to anyone, prior registration is required. To ensure all interested parties have the opportunity to present at these forums, recommendations should be limited to two minutes.
You may register by visiting the site below:
http://www.opwdd.ny.gov/2011_waiver/waiver_public_forums.jsp
Monday, May 9, 2011
Research Every Drug and/or Therapy Before Treating Your Loved One
I thought this was too important to not share. I have always researched everything before trying with my children, no matter how much I trust the doctor or therapist.
A doctor nationally known for treating autism with a drug sometimes used to chemically castrate sex offenders has been suspended from practicing medicine in his home state of Maryland after state officials determined he is putting children at risk.
Dr. Mark Geier allegedly misrepresented his credentials, misdiagnosed children and urged parents to approve risky treatments without fully informing them of the potential dangers, according to the Maryland Board of Physicians.
The board's order, dated April 27, states that Geier "endangers autistic children and exploits their parents by administering to the children a treatment protocol that has a known substantial risk of serious harm and which is neither consistent with evidence-based medicine nor generally accepted in the relevant scientific community."
Geier told the Tribune in 2009 that he had treated hundreds of children with a testosterone suppressant called Lupron, which he called a "miracle drug." But a Tribune investigation exposed the therapy as a potentially dangerous treatment based on junk science and promoted by a physician not board-certified in any specialty relevant to autism or the use of hormone-disrupting drugs.
Geier, who has treated Illinois children and retains a license to practice medicine here, is prominent in the world of alternative treatments for autism. His ASD Centers advertise "new hope for autism," and he has offices around the country, including in Springfield. Geier is scheduled to speak at the annual Autism One conference this month in west suburban Lombard.
The Maryland board found that in six of nine cases it reviewed, Geier incorrectly diagnosed children with autism with precocious puberty — that's the extraordinarily early onset of puberty — and prescribed Lupron, which is sometimes covered by insurance to treat that rare condition.
In some cases, according to the board, Geier diagnosed the children with precocious puberty and prescribed drug protocols without examining them or conducting proper tests. Some of the children Geier diagnosed were too old to have the condition.
Geier is a genetic counselor, but according to the Maryland board order he has falsely claimed to be a board-certified geneticist and epidemiologist.
Geier, who is not allowed to practice in Maryland while the case is pending, referred questions to attorney Joseph Schwartz III. At the root of the case, Schwartz said, was a "bona fide dispute over therapy" rather than a doctor who posed an immediate threat to patients.
"If you read the (order), you say, 'Holy God, this is awful.' But if it were so awful, they should have an injured child, and they don't," Schwartz said. "…It's just like shadowboxing with allegations that sound awful, but when you delve into the facts of them you say, 'What's the big deal here?'"
Experts have long doubted the scientific basis for Geier's claims and treatments. In 2009, about two dozen prominent endocrinologists, in a paper published online in the journal Pediatrics, dismissed his Lupron protocol. Experts also warn that Lupron can disrupt normal development and potentially put children's hearts and bones at risk.
The medical board also noted that Geier's son, David, who is not a medical doctor but serves as executive director of ASD Centers, examined a 10-year-old boy in May 2008. David Geier ordered lab tests for him and tried to check his neck and stomach by tapping him with an ultrasound wand as the boy moved around the room, the boy's mother told the board..
A record documenting that visit said the child's "symptoms are compatible with a diagnosis of pervasive developmental delay — not otherwise (specified)," and also noted insomnia and Unspecified Metabolic Disorder.
Maryland Gov. Martin O'Malley appointed David Geier in 2009 to the state's Commission on Autism as a "diagnostician," a decision state officials are reviewing. David Paulson, a spokesman for the state health department, said David Geier declined Wednesday to resign from the position.
A doctor nationally known for treating autism with a drug sometimes used to chemically castrate sex offenders has been suspended from practicing medicine in his home state of Maryland after state officials determined he is putting children at risk.
Dr. Mark Geier allegedly misrepresented his credentials, misdiagnosed children and urged parents to approve risky treatments without fully informing them of the potential dangers, according to the Maryland Board of Physicians.
The board's order, dated April 27, states that Geier "endangers autistic children and exploits their parents by administering to the children a treatment protocol that has a known substantial risk of serious harm and which is neither consistent with evidence-based medicine nor generally accepted in the relevant scientific community."
Geier told the Tribune in 2009 that he had treated hundreds of children with a testosterone suppressant called Lupron, which he called a "miracle drug." But a Tribune investigation exposed the therapy as a potentially dangerous treatment based on junk science and promoted by a physician not board-certified in any specialty relevant to autism or the use of hormone-disrupting drugs.
Geier, who has treated Illinois children and retains a license to practice medicine here, is prominent in the world of alternative treatments for autism. His ASD Centers advertise "new hope for autism," and he has offices around the country, including in Springfield. Geier is scheduled to speak at the annual Autism One conference this month in west suburban Lombard.
The Maryland board found that in six of nine cases it reviewed, Geier incorrectly diagnosed children with autism with precocious puberty — that's the extraordinarily early onset of puberty — and prescribed Lupron, which is sometimes covered by insurance to treat that rare condition.
In some cases, according to the board, Geier diagnosed the children with precocious puberty and prescribed drug protocols without examining them or conducting proper tests. Some of the children Geier diagnosed were too old to have the condition.
Geier is a genetic counselor, but according to the Maryland board order he has falsely claimed to be a board-certified geneticist and epidemiologist.
Geier, who is not allowed to practice in Maryland while the case is pending, referred questions to attorney Joseph Schwartz III. At the root of the case, Schwartz said, was a "bona fide dispute over therapy" rather than a doctor who posed an immediate threat to patients.
"If you read the (order), you say, 'Holy God, this is awful.' But if it were so awful, they should have an injured child, and they don't," Schwartz said. "…It's just like shadowboxing with allegations that sound awful, but when you delve into the facts of them you say, 'What's the big deal here?'"
Experts have long doubted the scientific basis for Geier's claims and treatments. In 2009, about two dozen prominent endocrinologists, in a paper published online in the journal Pediatrics, dismissed his Lupron protocol. Experts also warn that Lupron can disrupt normal development and potentially put children's hearts and bones at risk.
The medical board also noted that Geier's son, David, who is not a medical doctor but serves as executive director of ASD Centers, examined a 10-year-old boy in May 2008. David Geier ordered lab tests for him and tried to check his neck and stomach by tapping him with an ultrasound wand as the boy moved around the room, the boy's mother told the board..
A record documenting that visit said the child's "symptoms are compatible with a diagnosis of pervasive developmental delay — not otherwise (specified)," and also noted insomnia and Unspecified Metabolic Disorder.
Maryland Gov. Martin O'Malley appointed David Geier in 2009 to the state's Commission on Autism as a "diagnostician," a decision state officials are reviewing. David Paulson, a spokesman for the state health department, said David Geier declined Wednesday to resign from the position.
Sunday, April 24, 2011
Free Help for Wandering
Half of All Children With Autism Wander and Bolt from Safe Places, Study Shows
ScienceDaily — The Interactive Autism Network (IAN) reveals the preliminary results of the first major survey on wandering and elopement among individuals with autism spectrum disorders (ASD), and announces the launch of a new research survey on the association between pregnancy factors and ASD. The wandering and elopement survey found that approximately half of parents of children with autism report that their child elopes, with the behavior peaking at age four. Among these families, nearly 50% say that their child went missing long enough to cause significant concern about safety.
The wandering and elopement survey found that approximately half of parents of children with autism report that their child elopes, with the behavior peaking at age four. Among these families, nearly 50% say that their child went missing long enough to cause significant concern about safety.
The National Autism Association, through a generous grant from the American Legion Child Welfare Foundation, is pleased to provide the Big Red Safety Box for caregivers as a means to educate, raise awareness and share simple tools that may assist in preventing, and responding to, wandering-related incidents in the ASD community.
Click on the link below to sign up for your free Big Red Safety Box:http://nationalautismassociation.org/bigredsafetybox.htm
ScienceDaily — The Interactive Autism Network (IAN) reveals the preliminary results of the first major survey on wandering and elopement among individuals with autism spectrum disorders (ASD), and announces the launch of a new research survey on the association between pregnancy factors and ASD. The wandering and elopement survey found that approximately half of parents of children with autism report that their child elopes, with the behavior peaking at age four. Among these families, nearly 50% say that their child went missing long enough to cause significant concern about safety.
The wandering and elopement survey found that approximately half of parents of children with autism report that their child elopes, with the behavior peaking at age four. Among these families, nearly 50% say that their child went missing long enough to cause significant concern about safety.
The National Autism Association, through a generous grant from the American Legion Child Welfare Foundation, is pleased to provide the Big Red Safety Box for caregivers as a means to educate, raise awareness and share simple tools that may assist in preventing, and responding to, wandering-related incidents in the ASD community.
Click on the link below to sign up for your free Big Red Safety Box:http://nationalautismassociation.org/bigredsafetybox.htm
Saturday, April 23, 2011
Develpomental Disabilities Awareness Day
On May 26, 2011 the 23rd Annual DDDay will be held at the Buffalo Niagara Convention Center. All of the info. is listed below. You have until May 2nd to reserve your spot.
I'd also like to wish everyone a Happy Easter! If you don't celebrate Easter then Happy Sunday! 23rd Annual Developmental Disabilities Awareness Day, or DDDay! conference will beThursday, May 26, 2011, from 8:00 am - 4:00 pm at the Buffalo Niagara Conventionwhich is open to the public, will bring together approximately 2,000 people includingkeynote speaker is Dr. Al Condeluci, PhD. a national leader and consultant onfeature 29 workshops and seminars on various topics concerning the validhttp://wwwddawny.eventbrite.com or calling (716) 896-2180 Ext. 139 .
April 1, 2011
For Immediate Release
Contact: Kim Palermo, DDDay Chairperson: (716) 896-2180, ext. 143
DEVELOPMENTAL DISABILITIES AWARENESS DAY
THE LARGEST CONFERENCE OF ITS TYPE IN THE USA!
THURSDAY, MAY 26, 2011 – BUFFALO, NEW YORK
The
held on
Center.
This event,
individuals with developmental disabilities and their families, human service agency
representatives, and local officials to explore current issues in the field. The day will include
speakers, workshops, vendor exhibits, and provide information on the many services available to
people with developmental disabilities living in the Western New York community.
This year’s
human services and community issues, is the author of six books that have won praises and
awards for their thoughtful approach to culture and community.
The conference will
participation, contribution and involvement of developmentally disabled people in the Western
New York community and society overall.
Additionally, there will be a Parents Area where parents can talk to experts from local agencies
and have their questions answered. Other special events include an Art Gallery featuring local
artists, an Internet Café and various performers throughout the day.
Registration for the conference is open to all and pricing and further information is available by
visiting
I'd also like to wish everyone a Happy Easter! If you don't celebrate Easter then Happy Sunday! 23rd Annual Developmental Disabilities Awareness Day, or DDDay! conference will beThursday, May 26, 2011, from 8:00 am - 4:00 pm at the Buffalo Niagara Conventionwhich is open to the public, will bring together approximately 2,000 people includingkeynote speaker is Dr. Al Condeluci, PhD. a national leader and consultant onfeature 29 workshops and seminars on various topics concerning the validhttp://wwwddawny.eventbrite.com or calling (716) 896-2180 Ext. 139 .
PRESS RELEASE
Wednesday, April 20, 2011
Temple Grandin @ Canisius College TONIGHT
Temple Grandin
"Animal Behavior, Autism and Sensory Based Thinking"
Canisius College
Wednesday April 20, 2011 @ 8 pm Doors Open at 7 pm
Free and open to the public but seating is limited to first come first served
Location: Montante Cultural Center
2001 Main Street, Buffalo, NY 14208
Parking in Lyons Hall Lot and Science Hall Parking Ramp.
You do not need to register. Come early as it is first come first served seating.
More info: www.canisius.edu
or call 888-8206
Six Part Series on "Autism Today"
PBS Newshour
Starts Monday April 18, 19, 20,21, 25
Ends Tuesday April 26
6:30 pm
Robert MacNeil, grandfather to 6 year old Nick with autism hosts this six part series. Includes: Intro/Autism Prevalence/Autism Causes/Autism Treatment/Adults with Autism/Autism Policy.
Free Communication Workshop
Autistic Services Inc.
Wednesday April 27, 2011
5 pm - 7 pm
To learn more about various methods of communication and how to maximize communication opportunities in the home. Learn more about the communication methods your child uses at school.
Location: Autistic Service
4444 Bryant Stratton Way
Williamsville, NY 14221
Register by Thursday April 21st call Tracy Panzarella 631-5777 ext 328
Sensory Friendly Film "Rio"
AMF Maple Ridge Theatre - Suite C
4276 Maple Road, Amherst NY
Cost: $4.50
Purchase tickets at the box office day of event. Enjoy your favorite film is a safe and accepting environment on a monthly basis. Lights brought up and sound turned down. Bring your own GF CF snacks . No advertisements or previews shown. Audience members are welcome to shout, sing or dance. Silence is golden policy is NOT enforced. Obviously, policies enforced when safety of the audience is questioned.
Autism Awareness Walk
to benefit Summit Educational Resources
Saturday April 30, 2011
Location: 150 Stahl Road, Getzville NY
Registration: 9:00 a.m.
Walk Begins: 10:00 a.m.
Walk Begins: 10:00 a.m.
Picnic with food, beverages, bounce houses, and children's activities immediately following the Walk
More info: http://www.summited.org/
2011 Walk Now for Autism Speaks
I have started a team (Buffalo Herd) for the 2011 Walk Now for Autism Speaks in Rochester.
I am recruiting members to walk & raise money.
The walk is on Sept. 24, 2011, 12:30 p.m. registration, 1.5 mile walk starts at 2:00 p.m.
This is a family fun event to raise money for research.
Please join my team for this year and hopefully we can start a run in Buffalo in the next year or two. Follow the link below to get to the team page to join:
Friday, April 8, 2011
Autism Insurance Reform Bill in NY to be voted on Monday April 11, 2011
Below is an e-mail I recieved from "Autism Speaks" The Autism Health Insurance refom bill for NY State will be voted upon on Monday, April 11. We need your help!!!! And we're off! We just found out that Senate Bill 4005, the autism insurance reform bill sponsored by Senator Charles Fuschillo, Jr., will be voted upon in the Senate Insurance Committee on Monday, April 11, 2011. We need your help today and over the weekend to contact all of the members of the Senate Insurance Committee below and leave a brief message that you would like them to vote in favor of the bill.
Working together we can, and will, obtain autism insurance reform for the state of New York. For more information on the legislation in New York, visit www.autismvotes.org/NewYork. Happy dialing! Shelley HendrixDirector, State Based AdvocacyAutism Speaks |
Apologies
So sorry that I wasn't able to post the instructions for the body sack last weekend. Those of you taking care of an autistic child understand!! Anyway, a trip to visit my mom this morning & then back home to work on the sack. I will post it sometime this weekend, hopefully!
Thursday, March 31, 2011
Easter Egg Hunt for Kids with Special Needs and More
Hello everyone!! Over the week-end I will show you how to make your child a body sock (great for sensory disorders), my son is in his below. I will give step by step instructions along with photos. It's very easy to make & your child will absolutely love it!! Even if you don't have a sewing machine, you can do it by hand. I wanted to start it tonight but remembered we have aquatic therapy. Stay tuned and please, if there is anything you would like to share or see here let me know.
Western New York Family Magazine can now be viewed online at:
This month the magazine has a "Special Needs Child" pull out section that has so much information including a section about the Lothlorien Therapeutic Riding Center. I gave information on the riding center in the "Fun Autism Therapies" section of my blog.
This sounds like a lot of fun:
Easter Egg Hunt Saturday, April 16th, 2011 inside Lincoln arena (1200 Parker Blvd Tonawanda 14223). The hunt for kids with special needs is at 10:30am All participants will receive a prize. It is free!!
Check out the following website for the Autism Society of WNY. You can also find more information on the Workshop below on the website.
EnVISIONing a Bright Future for All Individuals with ASD With Patricia Lemer
Saturday,
April 9, 2011
8:45 am-12:45 pm
Saturday,
April 9, 2011
8:45 am-12:45 pm
at Salvatore's
2011 Walk Now For Autism Speaks: Rochester, NY Chapter Saturday, September 24
I am putting together a team from Buffalo/suburbs named "Buffalo Herd" , for this walk to raise funds for Autism Speaks. Join me by clicking on the link below then click on Team Page and click Join Our Team or contact me through this blog. Bring the kids & make it a family outing!!
Don't forget to LIGHT IT UP BLUE Friday & Saturday to help spread Autism Awareness. World Autism Awareness Day is Saturday, April 2. Wear blue and change the porch light to blue!!
Tuesday, March 29, 2011
Fun Autism Therapies
When looking for therapies for my son I found it difficult to find many in the Buffalo, NY area. Today I will list some therapies that your child may enjoy as well as In-Home Behavior Therapy.
Buffalo Women & Children's Hospital Aquatic (swim) Therapy- My little guy loves this therapy! The therapy is given at Buffalo Therapy Services 115 Flint Rd, Williamsville, NY
The contact number is 716-878-7470, the website shows the pediatric therapies available through Children's Hospital http://www.wchob.org/services/services_display.asp?SID=625&CID=9
You just need a prescription from the doctor for "aquatic therapy"
One of the therapies that I think looks great is Horse Therapy (Equine or Hippotherapy). I am going to register my son for the summer.
Lothlorien Therapeutic Riding Center, 15 Reiter Rd., East Aurora, NY 14052, 716-655-1335
www.lothlorientrc.org
Buffalo Therapeutic Riding Center, Buffalo Therapeutic Riding Center, Inc.
950 Amherst Street · Buffalo, New York 14216, (716) 877-9295
www.thebtrc.org
Moving Miracles is a dance/movement program for children, adolescents and adults who are exceptionally challenged mentally, physically and/or emotionally. 954 Union Road Suite 1, West Seneca, NY 14224
716-656-1321 e-mail movingmiracles_dance@verizon.net
www.movingmiracles.org
In-Home Behavior Therapy- I like this one!!
Requirements: Developmental disability, behavior problems in the home
We have behavior therapy in the home 3 times per week. The therapists we have are great, my son likes when they come to the house. The therapists work with my son as well as my husband and I.
This is a Federally funded program and you are entitled to it at no cost to you. You can contact your Medicaid Service Coordinator, if you have one. Your coordinator or you can contact Sue Olexanko at
716-880-3700.
If your child's behavior is out of control you can call Spectrum Service's C.A.R.E.S. program at
716-882-4357. They will send someone out within 24 hrs. to observe and then suggest the therapy needed in your home and they will provide that therapy.
Remember that you are entitled to these therapies through federal funds as long as the requirements are met.
I hope you find this information useful. The reason for my blog is to help you and your child.
Buffalo Women & Children's Hospital Aquatic (swim) Therapy- My little guy loves this therapy! The therapy is given at Buffalo Therapy Services 115 Flint Rd, Williamsville, NY
The contact number is 716-878-7470, the website shows the pediatric therapies available through Children's Hospital http://www.wchob.org/services/services_display.asp?SID=625&CID=9
You just need a prescription from the doctor for "aquatic therapy"
One of the therapies that I think looks great is Horse Therapy (Equine or Hippotherapy). I am going to register my son for the summer.
Lothlorien Therapeutic Riding Center, 15 Reiter Rd., East Aurora, NY 14052, 716-655-1335
www.lothlorientrc.org
Buffalo Therapeutic Riding Center, Buffalo Therapeutic Riding Center, Inc.
950 Amherst Street · Buffalo, New York 14216, (716) 877-9295
www.thebtrc.org
Moving Miracles is a dance/movement program for children, adolescents and adults who are exceptionally challenged mentally, physically and/or emotionally. 954 Union Road Suite 1, West Seneca, NY 14224
716-656-1321 e-mail movingmiracles_dance@verizon.net
www.movingmiracles.org
In-Home Behavior Therapy- I like this one!!
Requirements: Developmental disability, behavior problems in the home
We have behavior therapy in the home 3 times per week. The therapists we have are great, my son likes when they come to the house. The therapists work with my son as well as my husband and I.
This is a Federally funded program and you are entitled to it at no cost to you. You can contact your Medicaid Service Coordinator, if you have one. Your coordinator or you can contact Sue Olexanko at
716-880-3700.
If your child's behavior is out of control you can call Spectrum Service's C.A.R.E.S. program at
716-882-4357. They will send someone out within 24 hrs. to observe and then suggest the therapy needed in your home and they will provide that therapy.
Remember that you are entitled to these therapies through federal funds as long as the requirements are met.
I hope you find this information useful. The reason for my blog is to help you and your child.
Monday, March 28, 2011
Lowe's Build & Grow Clinics- Birdhouse
https://www.lowesbuildandgrow.com/
What a confidence builder, your child can have fun & say "I built it!", with Lowe's Build and Grow kid's clinics. Bring the kids into any Lowe's store and build a FREE wooden project. Each participant also receives a free apron, goggles, a project themed patch, and a certification of merit upon completion of their project. I believe you can do the project at home if needed. Check out the website for more info.
What a confidence builder, your child can have fun & say "I built it!", with Lowe's Build and Grow kid's clinics. Bring the kids into any Lowe's store and build a FREE wooden project. Each participant also receives a free apron, goggles, a project themed patch, and a certification of merit upon completion of their project. I believe you can do the project at home if needed. Check out the website for more info.
April's Family Activities
Sensory Friendly Films at AMC Theatres gives us the opportunity to take our children to the movies and we don't have to stress over how they will behave. The movie auditoriums will have their lights brought up and the sound turned down. You are able to bring your own snacks for special diets. The kids are free to move around and make noise as long as it is safe for everyone. The movie is open to all, including kids not on the spectrum.
Saturday, April 2 Autism Awareness Day- Wear Blue Today!!
Movie: Hop
Time: 10 a.m.
Location: AMC Maple Ridge 8, 4276 Maple Rd., Ste C, Amherst, NY 14226
Cost: $4.50
Saturday, April 30
Movie: Rio
Time: 10 a.m.
Location: AMC Maple Ridge 8, 4276 Maple Rd., Ste C, Amherst, NY 14226
Cost: $4.50
The AMF- A Gift for Autism - Child-Parent Bowling League
Spring 2011 Bowling League Feb 26- June 4, join at any time
Time: Saturday mornings 9a.m.
Location: AMF Thruway Lanes, 1550 Walden Ave., Cheektowaga, NY 14225
Cost: $18 per team per week part of the proceeds go to the Autism Society of WNY
An extremely flexible league, if you need adjustments just ask & they can probably accommodate you.
1 adult & 1 child per team, 2 games weekly
For more info. & registration call 716-896-8507 or amf00233@amf.com
Later today/tonight I will be listing some fun therapies in the area so check back.
Saturday, April 2 Autism Awareness Day- Wear Blue Today!!
Movie: Hop
Time: 10 a.m.
Location: AMC Maple Ridge 8, 4276 Maple Rd., Ste C, Amherst, NY 14226
Cost: $4.50
Saturday, April 30
Movie: Rio
Time: 10 a.m.
Location: AMC Maple Ridge 8, 4276 Maple Rd., Ste C, Amherst, NY 14226
Cost: $4.50
The AMF- A Gift for Autism - Child-Parent Bowling League
Spring 2011 Bowling League Feb 26- June 4, join at any time
Time: Saturday mornings 9a.m.
Location: AMF Thruway Lanes, 1550 Walden Ave., Cheektowaga, NY 14225
Cost: $18 per team per week part of the proceeds go to the Autism Society of WNY
An extremely flexible league, if you need adjustments just ask & they can probably accommodate you.
1 adult & 1 child per team, 2 games weekly
For more info. & registration call 716-896-8507 or amf00233@amf.com
Later today/tonight I will be listing some fun therapies in the area so check back.
Sunday, March 27, 2011
World Autism Awareness Day
My little guy is finally asleep and I am now wide awake for some reason!! I wanted to make sure that everyone out there is aware of World Autism Awareness Day on April 2. Join Autism Speaks' "Light It Up Blue" campaign. Many buildings & homes around the WORLD will be lit up blue on April 1 & 2 to recognize Autism. I changed my front porch light to a blue light bulb that my husband purchased at Home Depot, they have a "Light It Up Blue" display. The Empire State Building will be lit up blue, and I believe I read that the lights on Niagara Falls will be blue.
Autismspeaks.org has some nice "Light It Up Blue" items including t-shirts. So change the outside lights to blue, put a string of blue lights in the window, wear blue clothing, do whatever you can do that day to recognize Autism!!
Autismspeaks.org has some nice "Light It Up Blue" items including t-shirts. So change the outside lights to blue, put a string of blue lights in the window, wear blue clothing, do whatever you can do that day to recognize Autism!!
Stay Tuned
Welcome to my new blog. My intent is to help other parents/caregivers of children on the Autism Spectrum. My son was diagnosed with moderate autism last year and since then autism has consumed me!! I'm retired so I have a lot more time to spend researching than the average parent does. I will be sharing information that I found/find with all of you. I will do my very best to update this blog every 1-2 days. Please feel free to share information, thoughts, and comments with us all.
"I don't know what caused my son's autism nor do I know how to cure it, so I will accept it and deal with it one day at a time." -my quoute
"I don't know what caused my son's autism nor do I know how to cure it, so I will accept it and deal with it one day at a time." -my quoute
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